NSF Registry for Patients with NSF

September 10, 2008

NSF Registry for Patients with NSF

History of the NSF Registry

The NSF Registry - Data Collection of Nephrogenic Systemic Fibrosis Information & Research. According to the NSF Registry at Yale University (New Haven, CT), the NSF Registry maintains records on over 215 patients with NSF. Of these 215 NSF patients, more than 95% of all NSF patients surveyed have been exposed to a gadolinium within 2-3 months prior to the onset of symptoms of NSF with a majority of those on dialysis. Further, a number of patients with impaired renal function have been reported to the NSF registry.

NSF Registry Gathers Data on NSF

The NSF Registry was formed by Dr. Shawn Cowper to gather and organize information concerning Nephrogenic Systemic Fibrosis (NSF) from patients worldwide. The goal of the NSF Registry is to identify factors that may relate to or cause NSF. Currently the NSF Registry has collected medical data, treatment methods and results of several hundred NSF patients in order to evaluate the current NSF treatment options and hopefully find new and even more effective NSF treatment medications, therapies and strategies in the future.

Contact Information for the NSF Registry
Contacting the NSF Registry by e-mail is the preferred method at: registermc@juno.com

NSF Registry Telephone: (203) 785-3524
NSF Registry Fax: (203) 785-6869

Per the instructions on their website, patients should not send any medical information, tissue samples or slides to the NSF Registry unless directed to do so by Dr. Cowper or Carol Hribko.

Mailing Address: (to send microscope slides)

Carol Hribko
Yale Dermatopathology Service
PO Box 208059
15 York Street, LMP 5031
New Haven, CT. 06520-8059

Testing for NSF

If you would like more information about being tested for NSF and the current methods that are used to evaluate a patient for NSF or NFD, then call us at 1-800-883-9858. Note, we are a law firm in Houston, Texas and can help provide information about NSF punch biopsy testing and other currently methods for diagnosing NSF. We do not actually perform any medical procedures, but can assist in providing the current accepted protocol used by Physicians throughout the United States.

NSF Lawsuit - Free Case Evaluation

If you need more information about your legal rights to a Gadolinium NSF Lawsuit, please call us toll free at 1-800-883-9858 or  visit us online at Gadolinium NSF Lawsuit Evaluation

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